It sounds crazy, I know. But the RA diagnosis brought about some positive changes in my life along with the negative. Certainly, we could debate about how I would be better off if I had never gotten sick. I would have been able to continue with my career, perhaps go to law school as I had planned. But I don't think about the "what ifs" because the reality is that I have this disease. So I'm happy that along with the frustration of the pain and fatigue, I gained a new outlook on life. I was able to find a satisfying creative outlet I never would have otherwise. Through necessity, I learned how to become my own advocate and became more confident and assertive in general.
Early in my diagnosis I tried so many different things to ease the pain and swelling. I gave up caffeine (though I didn't drink much to begin with). I went to a Reiki Master. I got a new mattress and nice bedding - I figured as much time as I spend in bed, it was worth making it feel great. Epsom salt baths, fish oil supplements, the list goes on. I have been in remission. I have been unable to stand for 5 minutes. But the past few months I have made some major changes in my lifestyle and I am seeing great results in how I feel. For the first time in 9 years, I am completely off pain killers!
I began walking 5 days a week. When the weather was nice, I would go to a local park and walk along the river. Being outside, breathing in the fresh air, was a bonus. I started small, a mile to a mile and a half. I decided what 2 days I would have as my rest days based on how I was feeling. Before I knew it, I was walking 3-5 miles a day! I began lifting weights 3 days a week. Again, I took it slow with 3 pound weights and just a few reps and built up. I also use my compression gloves, since the weights put stress on my hands and wrists. I've since added in yoga and began some jogging intervals when I walk. While I still have pain, of course, it is much more manageable. I feel stronger and have better endurance. The one area the exercise hasn't helped is my sleep. I still sleep terrible.
My next focus is my diet. I'm caught in a vicious cycle - the pain interrupts my sleep, because I didn't sleep well I'm tired, because I'm tired I crave sugar, the sugar increases my pain, and then I don't sleep well. (I discovered the sugar connection to my pain recently.) It is going to take some serious willpower to cut way back on my sugar intake so that hopefully I can break the cycle! Plus, I still have a pesky 20 pounds I'm trying to lose. I'll let you know how it goes! As much as the activity has improved my quality of life, I imagine that changing what I eat will do even more. Fingers crossed!
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| River view as I walk - from March |










